Through personal contact and a news letter the advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.
Standard reporting tier
This charity files the simpler annual return required of organisations under £500k income. Income totals, year-on-year growth, government reliance, and salary band data are available. The detailed accounts breakdown — reserves, asset/liability split, expenditure ratios — is not.
Latest HighlightsFY 2025
Income
All sources
£0
Expenditure
All activities
£0
Net Reserves
Unrestricted funds
N/A
Total Assets
Gross assets
N/A
Working Capital
Liquidity
N/A
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