Question 1

What is the mission of BARDET-BIEDL SYNDROME UK (BBS UK)?

Accepted Answer

BBS UK provides support, information and advocacy services.  It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome.  The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.

Question 2

What is the financial size of BARDET-BIEDL SYNDROME UK (BBS UK)?

Accepted Answer

BARDET-BIEDL SYNDROME UK (BBS UK) is classified as a medium charity. In the latest financial year, they reported a total income of £395,748 and total expenditure of £294,676.

Question 3

What is the workforce structure of BARDET-BIEDL SYNDROME UK (BBS UK)?

Accepted Answer

BARDET-BIEDL SYNDROME UK (BBS UK) employs an undisclosed number of staff and is supported by 10 volunteers.

Question 4

Does BARDET-BIEDL SYNDROME UK (BBS UK) receive government funding?

Accepted Answer

Yes. Approximately 51.9% of their income comes from government grants or contracts.

Question 5

Does BARDET-BIEDL SYNDROME UK (BBS UK) pay its trustees?

Accepted Answer

No, the latest data indicates that trustees do not receive payments or personal benefits from the charity.

BARDET-BIEDL SYNDROME UK (BBS UK)

Standard reporting tier

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