Providing information about this rare syndrome to families and professionals. Links with other cdls support groups around the world to give information in different languages, meetings & research.
Standard reporting tier
This charity files the simpler annual return required of organisations under £500k income. Income totals, year-on-year growth, government reliance, and salary band data are available. The detailed accounts breakdown — reserves, asset/liability split, expenditure ratios — is not.
Latest HighlightsFY 2025
Income
All sources
£53,629
Expenditure
All activities
£47,139
Net Reserves
Unrestricted funds
N/A
Total Assets
Gross assets
N/A
Working Capital
Liquidity
N/A
Related Charities
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