Question 1

What is the mission of CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND)?

Accepted Answer

SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.

Question 2

What is the financial size of CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND)?

Accepted Answer

CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) is classified as a large charity. In the latest financial year, they reported a total income of £4,850,763 and total expenditure of £1,410,954.

Question 3

How does CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) allocate its spending?

Accepted Answer

For every pound spent, approximately 88.4% goes directly to charitable activities. The remaining 11.6% is spent on raising funds and administration. This is lower than the median for similar-sized charities (97.7%).

Question 4

What is the workforce structure of CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND)?

Accepted Answer

CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) employs 0 staff members and is supported by 15 volunteers.

Question 5

Does CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) receive government funding?

Accepted Answer

To a small extent. Approximately 0.0% of their income comes from government grants or contracts.

Question 6

Does CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) pay its trustees?

Accepted Answer

No, the latest data indicates that trustees do not receive payments or personal benefits from the charity.

CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND)

Latest HighlightsFY 2024

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