To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
Standard reporting tier
This charity files the simpler annual return required of organisations under £500k income. Income totals, year-on-year growth, government reliance, and salary band data are available. The detailed accounts breakdown — reserves, asset/liability split, expenditure ratios — is not.
Latest HighlightsFY 2025
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