Connecting families and raising awareness amongst affected families and the general public.Uk research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at medical events and conferences.Initiation and co-sponsorship of international fa gene therapy working group.
Standard reporting tier
This charity files the simpler annual return required of organisations under £500k income. Income totals, year-on-year growth, government reliance, and salary band data are available. The detailed accounts breakdown — reserves, asset/liability split, expenditure ratios — is not.
Latest HighlightsFY 2025
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