Question 1

What is the mission of SUDEP ACTION?

Accepted Answer

SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.

Question 2

What is the financial size of SUDEP ACTION?

Accepted Answer

SUDEP ACTION is classified as a medium charity. In the latest financial year, they reported a total income of £517,612 and total expenditure of £695,986.

Question 3

How does SUDEP ACTION allocate its spending?

Accepted Answer

For every pound spent, approximately 91.8% goes directly to charitable activities. The remaining 8.2% is spent on raising funds and administration. This is lower than the median for similar-sized charities (98.6%).

Question 4

What is the workforce structure of SUDEP ACTION?

Accepted Answer

SUDEP ACTION employs 10 staff members and is supported by 10 volunteers.

Question 5

Does SUDEP ACTION receive government funding?

Accepted Answer

To a small extent. Approximately 0.0% of their income comes from government grants or contracts.

Question 6

Does SUDEP ACTION pay its trustees?

Accepted Answer

No, the latest data indicates that trustees do not receive payments or personal benefits from the charity.

SUDEP ACTION

Latest HighlightsFY 2025

Income Sources

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