Provides support to children and adults affected by 1p36 deletion syndrome and their families in the uk, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Standard reporting tier
This charity files the simpler annual return required of organisations under £500k income. Income totals, year-on-year growth, government reliance, and salary band data are available. The detailed accounts breakdown — reserves, asset/liability split, expenditure ratios — is not.
Latest HighlightsFY 2025
Income
All sources
£0
Expenditure
All activities
£0
Net Reserves
Unrestricted funds
N/A
Total Assets
Gross assets
N/A
Working Capital
Liquidity
N/A
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