Question 1

What is the mission of THE EHLERS-DANLOS SOCIETY?

Accepted Answer

Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population.  A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.

Question 2

What is the financial size of THE EHLERS-DANLOS SOCIETY?

Accepted Answer

THE EHLERS-DANLOS SOCIETY is classified as a large charity. In the latest financial year, they reported a total income of £1,552,526 and total expenditure of £1,409,241.

Question 3

How does THE EHLERS-DANLOS SOCIETY allocate its spending?

Accepted Answer

For every pound spent, approximately 99.2% goes directly to charitable activities. The remaining 0.8% is spent on raising funds and administration. This is higher than the median for similar-sized charities (97.7%).

Question 4

What is the workforce structure of THE EHLERS-DANLOS SOCIETY?

Accepted Answer

THE EHLERS-DANLOS SOCIETY employs 20 staff members and is supported by 0 volunteers.

Question 5

Does THE EHLERS-DANLOS SOCIETY receive government funding?

Accepted Answer

To a small extent. Approximately 0.0% of their income comes from government grants or contracts.

Question 6

Does THE EHLERS-DANLOS SOCIETY pay its trustees?

Accepted Answer

No, the latest data indicates that trustees do not receive payments or personal benefits from the charity.

THE EHLERS-DANLOS SOCIETY

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