The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of vhl, bhd and hlrcc at centres of excellence in the uk and ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.
Standard reporting tier
This charity files the simpler annual return required of organisations under £500k income. Income totals, year-on-year growth, government reliance, and salary band data are available. The detailed accounts breakdown — reserves, asset/liability split, expenditure ratios — is not.
Latest HighlightsFY 2025
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